This is a letter/email you can adapt and send to your MP to express your concern about the MAGENTA trial (feel free to adapt this if you want to):

[If writing as a posted letter,
your address here
including email address]

 

[If writing as a posted letter,
MP’s address goes here:
you can search for it on the
Parliament website]

Date

Dear [Name] MP,

I am one of your constituents.  Please will you take note of and sign the following petition:

“Suspend all trials of graded exercise therapy in children and adults with ME/CFS”.

ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) is a devastating neurological disease that can leave sufferers bedbound and/or tube fed.

Graded exercise therapy is a controversial psychological therapy that relies on evidence from the now scientifically disputed PACE trial.

We are concerned that trials that investigate graded exercise therapy are potentially harmful to participants.  This is all the more worrying when the participants are children, who may find it harder to withdraw from treatment.

Recent biomedical research shows abnormalities in ME patients’  energy production systems including research demonstrating that cellular metabolism is dramatically slowed. This indicates that ME patients cannot generate the resources to exercise as MAGENTA and other graded exercise studies recommend.

Moreover, at a time where exciting biomedical research is being carried out into ME/CFS worldwide it would seem more pertinent to allocate limited funds into building upon this promising research.

This petition means a lot to me, [as I believe that it has the power to improve treatment for ME/CFS patients like myself]. Your support would be much appreciated.

For more information please visit www.stopGET.org.

Thank you for your time

Yours sincerely,

[Your Name]